National Organisations : A to Z
Bereavement
Cruse Bereavement Care
Tel: 0844 477 9400
Web : www.crusebereavementcare.org.uk
is the best known national organisation for all issues relating to bereavement. They offer advice and support in a variety of ways including a helpline, email service and local groups.
Bile Duct - See Liver
Black and Ethnic Minorities
Cancer Black Care
Tel: 020 8961 4151
Web : www.cancerblackcare.org.uk is the UK's leading cancer support service for the black and minority ethnic (BME) community. In addition to the helpline and the website they run support groups across the country.
Bladder
Bladder Cancer Webcafe
Web: www.blcwebcafe.org
is a US website covering all aspects of bladder cancer treatment. It provides links to resources in Europe and the UK.
Bone
Bone Cancer Trust
Web: www.bonecancerresearch.org.uk
is the most useful site we can find specifically for bone cancer. As well as good information the website has an online forum page and provides links to useful organisations.
Bowel (Colorectal)
Bowel Cancer UK
Tel: 08708 506050
Web: www.bowelcanceruk.org.uk
is a leading bowel cancer charity. In addition to a comprehensive website there is also a telephone helpline service.
The Core Charity
Tel : 020 7486 0341
Web:
www.corecharity.org.uk
is the working name of the Digestive Disorders Foundation. The website has a comprehensive links section in addition to a wide range of downloadable leaflets. It does not have a helpline service.
Brain
The Brain and Spine Foundation
Tel:
0808 808 1000
Web:
www.brainandspine.org.uk
provide an excellent downloadable handbook on primary brain tumours. They also have an online and a telephone helpline service.
The Samantha Dickson Brain Tumour Trust
Tel:
0845 130 9733
Web:
www.braintumourtrust.co.uk
is a national support organisation for patients and families suffering from all types of brain cancers. You will find details of their patient support service on their website.
Breast
Breast Cancer Care
Tel:
0808 800 6000
Web:
www.breastcancercare.org.uk
is the leading provider of breast cancer information and support across the UK. All their services are free and include a helpline, website, publications and practical and emotional support.
Breakthrough Breast Cancer
Tel:
08080 100 200
Web:
www.breakthrough.org.uk
is the UK's leading breast cancer charity and as such has an excellent website.
Breast Cancer Havens
Web : www.breastcancerhaven.org.uk
provide centres, based in the north of England, offering free programmes of supportive care to breast cancer patients. The website also includes a range of helpful leaflets.
Cervical
Jo's Trust
Tel:
01327 341965
Web:
www.jotrust.co.uk
provides online cervical cancer information and counselling. Free confidential expert medical advice and support is available through the website.
Childrens Cancers
Contact
Web:
www.childcancer.org.uk
is an offshoot of the Children's Cancer and Leukaemia Group's site - a professional organisation and charity responsible for the organisation of the treatment and management of children with cancer in the UK. where you will find information for parents and family members affected by childhood cancer.
The Christian Lewis Trust
Tel:
01792 480500
Web:
www.christianlewistrust.org
is a national organisation set up to support the families of children who are affected by cancer. In addition to a number of other services they offer a telephone befriending service.
CLIC Sargent
Tel:
0800 197 0068
Web: www.clicsargent.org.uk
is the leading childrens cancer charity – it offers help and support at all stages of the journey both at home and in hospital. They offer support and advice in a number of ways inclusing a helpline.
Colorectal - see Bowel
Continence
The Continence Foundation
Tel: 0845 345 0165
Web: www.continence-foundation.org.uk
offers help and support to anyone affected with problems with their bladder or bowel.
Counselling
The Cancer Counselling Trust
Tel:
020 7704 1137
Web:
www.cancercounselling.org.uk
is a national charity offering free, specialist face to face counselling in London and telephone counselling across the UK. They work with cancer patients, their families, friends and care givers who seek counselling to help them through the difficult issues precipitated by a cancer diagnosis.
Eye
The Eye Cancer Network
Web: www.eyecancer.com
is an American site which provides information on all types of eye cancers.
The Childhood Eye Cancer Trust (CHECT)
Tel:
020 7377 5578
Web: www.chect.org.uk
is a UK wide charity for families and individuals affected by retinoblastoma. They offer support and information, fund research and raise public awareness of this rare cancer.
Facial Disfigurment
Lets Face It
Web : www.lets-face-it.org.uk
is an international support network for patients, families and friends. There is a wide range of information available on the website and a quarterly newsletter
Changing Faces
Web: http://www.changingfaces.org.uk/Home
Tel :
0845 4500 275 is a national providing information for both adults and children. They can also help you find a local support group.
Gall Bladder - see Liver
Gynae C
Web: www.communigate.co.uk
is a national support organisation for women affected by any type of gynaecological cancer.
Hodgkins - see Lymphoma
Home Improvements
Care and Repair
Web : www.careandrepair-england.org.uk is a national organisation set up to improve the housing and living conditions of older and disabled people.
I
J
Kidney
The James Whale Fund
Web: www.jameswhalefund.org
provides up to date information on kidney cancer with a comprehensive downloadable guide. Support is offered in a number of formats including an online forum.
Kidney Cancer UK
Tel:
01889 565801
Web:
www.kcuk.org
In addition to comprehensive information leaflets this site has an excellent links section.
Larynx
National Association of Laryngectomee Clubs
Tel:
020 7730 8585
Web: www.nalc.ik.com
is the only national association for this type of cancer. They provide information on all aspects of life after removal of the voice box and run regional groups to offer support.
The International Association of Laryngectomees
Web:
www.larynxlink.com
has a comprehensive links section that may prove useful but most of the organisations are not UK based.
Leukaemias
Leukaemia CARE
Tel:
0800 169 6680
Web:
www.leukaemiacare.org.uk
offers a comprehensive range of information, advice and support for all types of leukaemia.
Leukaemia Research
Web: www.lrf.org.uk
in addition to providing clear factual information about the diseases and their treatments there is an excellent guide to the role of complementary therapies in the treatment of blood cancers.
Liver
The British Liver Trust
Tel: 0800 652 7330
Web:
www.britishlivertrust.org.uk
is the national charity for all types of liver disease. It has comprehensive information on both primary and secondary liver cancer, runs a helpline and has a directory of support groups.
Lung
The Roy Castle Lung Foundation
Tel:
0800 358 7200
Web:
www.roycastle.org
is the UK's largest lung cancer organisation. It provides information on all aspects of living with lung cancer in a variety of formats. Contact via the website or the helpline.
Mesothelioma UK
Tel:
0800 169 2409
Web: www.mesothelioma.uk.com
provides up to date information via the website or the helpline, also has a directory of support groups.
Lymphodema
Lymphodema Support Network
Web : www.lymphoedema.org
is a national organisation offering information and support.
Lymphoma - Hodgkins and Non Hodgkins
The Lymphoma Association
Tel:
0808 808 5555
Web:
www.lymphoma.org.uk
is a national organisation with local groups across the country in addition to a comprehensive website.
The Life Site
Web: www.lifesite.info
is their site specifically for young people and incorporates an online forum.
Mouth
The Mouth Cancer Foundation
Web : www.rdoc.org.uk
offers extensive information on all aspects of mouth cancer treatment. In addition to an online query service there is also an online support group.
Myeloma
Myeloma UK
Tel:
0800 900 3332
Web: www.myelomaonline.org.uk
offers a range of services for people affected by myeloma. This includes an information helpline from which you can obtain a range of information leaflets.
Oesophageal
The Oesophageal Patients Association
Tel:
0121 704 9860
Web: www.opa.org.uk
is a national association which offers information and support via a helpline and a website. They also run informal regional meetings for patients, carers, families and friends.
Oral
The Mouth Cancer Foundation
Web:
www.rdoc.org.uk
website is an important source of information for oral cancer. It offers support via a message board facility.
Ostomy
Ostomy Lifestyle
Tel:
0800 731 4264
Web : www.lifestylecareline.com
offers information, advice and support to anyone who has had, or is about to have, any type of stoma. In addition to the website they also run a helpline
Ovarian
Ovacome
Tel:
020 7380 9589
Web: www.ovacome.org.uk
is a national organisation offering support and information for patients and families.
Pancreatic
Pancreatic Cancer UK
Web: www.pancreaticcancer.org.uk
provides a comprehensive website which will guide you to all the information that you need to know.
Pituitary
The Pituitary Foundation
Tel: 0845 450 0375
Web:
www.pituitary.org.uk
provides a support and information helpline and a helpline staffed by an endocrine nurse.
Prostate
The Prostate Cancer Charity
Tel:
0800 0748 383
Web:
www.prostate-cancer.org.uk
not only provides a comprehensive website it also offers information and support to patients and their families. Their helpline is manned by trained nurses who can talk you through every aspect of this disease.
The Prostate Cancer Support Association
Web:
www.prostatecancersupport.co.uk
is a national association of self help and support groups mainly in the South of England.
UK Prostate Link
Web: www.prostate-link.org.uk
is a website that allows you to compare information from over 50 websites. It covers a wide range of information and has an extensive links facility.
The Prostate Brachytherapy Advisory Group
Web :
www.prostatebrachytherapyinfo.net
provides extensive information on brachytherapy including details of treatment centres and funding.
The Rarer Cancers Forum
Tel:
01227 738279
Web:
www.rarercancers.org.uk
offers advice and information to patients and families of people affected by less common cancers via an online service and telephone.
Sarcomas
Sarcoma UK
Web:
www.sarcoma-uk.org
offers information on all types of sarcomas. The website is easy to use including an online forum for support, a good range of links and a request service for a range of leaflets.
Skin
MARCS Line
Resource Centre (Melanoma and Related Cancer of the Skin)
Tel:
01722 415071
Web:
www.wessexcancer.org
Staffed by specialist nurses this is a telephone advice line for anyone affected by melanoma or skin cancer and their families and friends. They also provide a range of leaflets giving advice on prevention and treatment.
The British Association of Dermatologists
Web: www.bad.org.uk
has an extensive website on all aspects of skin diseases and provides useful links to other related organisations.
Stomach (Gastric)
SCAN UK
Web: www.scanuk.org.uk
is a charity that has been set up to raise awareness of stomach cancer.
NCI
Web:
www.cancer.gov
is a US website with information on all types of cancer and their treatments.
Skin Camouflage
The British Association of Skin Camouflage
Web : http://www.skin-camouflage.net provides detailed information for people who need help to cover up scars following surgery, especially in the head and neck regions.
Testicular
Orchid Cancer Appeal
Tel:
020 7601 7167
Web : www.orchid-cancer.org.uk
provides general information about men's cancers and their treatments. The website has good links to other related organisations.
Thyroid
The British Thyroid Foundation
Tel:
01423 709707
Web:
www.btf-thyroid.org
is a national organisation with a well established network of local groups and telephone co-ordinators for people not living within easy reach of a group. The website has a comprehensive links section.
Vulval
VACO
Web: www.vaco.co.uk
is a support organisation for women affected by vulval cancer.
Young People
Teenage Cancer Trust
Web: www.teenagecancertrust.org
is committed to making life better for young people with cancer. The website has an online forum, information on the cancers that affect teenagers and details of the telephone helpline that is staffed by trained nurses.
Page Updated : 13-Jul-2009